Reclast Side Effects Poll and Discussion
SideEffects101.com is Your Comprehensive guide to all common, undocumented and undisclosed side effects associated with drugs. Post your experience, discuss symptoms & get reviews of drug users.
July 29, 2008 · Filed Under Health Polls
Comments
104 Responses to “Reclast Side Effects Poll and Discussion”
Leave a Reply
After reading this Reclast Side Effects Poll and Discussion article, people also read:
PatientsVille.com – Latest Comments- Re: Depakine Chrono Tablets Side Effects Summary - Reports by Depakine Chrono Tablets Users February 8, 2012
- Re: Pantecta Side Effects February 8, 2012
- Re: Metronidazole Questions and Answers | Patient Discussion Forum February 8, 2012
- Re: Solaraze Side Effects February 8, 2012
- Re: Livalo Questions and Answers | Patient Discussion Forum February 8, 2012
- Re: Dinintel Side Effects February 8, 2012
- Re: Rennie Side Effects February 8, 2012
- Re: Victoza Side Effects February 7, 2012
- Re: Rabeprazole Side Effects February 7, 2012
- Re: None Side Effects February 7, 2012
Subscribe to RSS Feed
I have suffered with abnormal heartbeats as well as major bone and joint pain.
I also had very severe bone and joint pain. This improved after almost 5 months. However, I also have high blood pressure and now am on medication for that.
I also have experienced severe bone and muscle pain. Reclast has thrwon me into oesteoarathritis in arms, shoulders, knees,legs and fingers. I can hardly use my fingers. I had my injecion in March 2008 and pain started in April in my arm. I have never had any type of arthritis before April. Best part is Drs. really don’t know how to treat us. I would love to talk to someone regarding this problem. I have been bedridden for 3 months. Hopefully, this will wear off in time. Hope it doesn’t take a year. Help if you can.
within a few weeks of having my infusion of reclast I began experiencing heart pounding and some irregular heart beats, i went to a cardiologist who put me on a 24 hr monitor and was told there were a few skips, etc but nothing to worry about…i dont know if it is just coincidental with the reclast and was curious to hear if anyone else is experiencing these uncomfortable symptoms…btw, i am 48 years old and other than breast cancer 9 years ago, i am healthy …thanks for sharing your stories.
I had my RECLAST on THURSDAY, NOV, 6th at 1:30 in the afternoon. I started out with a slight headache, 8;30 p.m.I had the worst chills I have ever experienced in my life..I am 71 yrs old.My family ended up putting 8 blanketson me. I don’t know if it was all the covers on me or my 103+ temperature, I finally started to get warm. I had such a severe headache, & my bones felt like someone was breaking them,all over my body. My family put 4 different calls into the dr. only to be told this is normal. I would love to know if any dr. or nurse ever had this injection. I THINK NOT. WE ARE THIER GUINI PIGS. You have heard the saying the cemetaries are full of drs. mistakes. It is Sunday the 9th,& I still feel awful. I will pray for all of you that you will get better. I know one thing they better never ask me to get another shot. My bones hurt terrible.
For 3-1/2 days after my injection I had severe pain in my spine and hips. I missed 3 days of work because I could hardly move. Two weeks later I began waking in the middle of the night with extreme pain in my shoulder and spine. After taking tylenol and applying heat, it subsided but the next morning my spine was sore. It wore off during the day, but returned again in the middle of the night. This pattern has been going on for 7 nights!! I called the doctor who gave me the infusion and she said I must have the flu and told me to call my primary physician!!
Since I just got the infusion a month ago, I’m concerned that I’m going to have recurring pain for the next year and a doctor who does not seem very concerned!
I had my first Reclast treatment on 9/11. Sometime in November, I began to experience horrible arthritis pain my left thumb. Now, I have it in both thumbs and my right arm. It is so uncomfortable and I generally feel terrible. I cannot take the orals b/c of esophogeal problems with Fosamax.
There was nothing written about thumb pain until recently, where I have found many articles on people experiencing the same symptoms.
New drugs … how do you make an intelligent decision when you’re faced with thining bones and little or no options?
“Association does not equal causation”: posters seem to assume that any symptom occurring within a year of the Reclast infusion is caused by Reclast (just noticing that, and wondering whether the manufacturer needs to do a better job of educating and reassuring patients and physicians). Following my first Reclast infusion I experienced moderate bone pain on Days 2 and 3; it was relieved by Advil. I had no fever, chills, or malaise and have since had nothing unusual happen. Discussions on an osteoporosis forum suggested that those of us who hydrated VERY thoroughly before and immediately following the infusion were less troubled by side effects. My second infusion is coming up now in a month and, as before, I will drink at least 2 quarts of liquid a day the day of the infusion and for two days preceding it. I refused oral osteoporosis drugs because of the esophageal and gastric hazards, and I am very grateful for Reclast. Disclaimer: I don’t work for the company that makes it and am not a medical professional.
IN APRIL 2008 I WAS GIVEN A RECLAST INFUSION AND HAD NO PROBLEM UNTIL JUNE, WHEN FINGER RINGS WERE ADJUSTED, AND PRESSURE CAUSED BONE SPUR GROWTH TO THE PALM OF MY LEFT HAND. THE FINGERS ON BOTH MY HANDS ARE STIFF, ESPECIALLY MY MIDDLE FINGERS, AND CONTINUOUSLY STRETCH THEM FOR SOME RELIEF. GLUCOSOMINE CHONDROITEN , WHICH OBLITERATED ARTHRITIS PAIN AND OUTWARD SIGNS OF BONE PROTUBERANCES ARE NOW INEFFECTIVE. THIS DRUG, ADVERTISEDE BY NOVARTIS FOR OSTEOPOROSIS INADVERTENTLY HAS MADE BONE MORE BRITTLE, CAUSING TWO TOES TO BREAK. WHERE, BEFORE, THERE WAS NOT THAT MUCH PAIN TO MY BROKEN LEFT HIP AND BACK FRACTURES , FROM A SCALE OF
1-10, IT NOW IS A 9. IF THOUSANDS WERE TESTED FOR RECLAST, THEN ALL THOSE WITH ARTHRITIS MUST HAVE GOTTEN THE PLACEBO.
WHAT WORRIES ME IS THE DEROGATORY LASTING EFFECT THIS DRUG WILL HAVE PAST THE YEAR ADVOCATED.,
I had the Reclast infusion on December 17, 2008. I have never ~ ever in my life been as sick as I was for 4 days. High fever, complete confusion, unable to walk without help, had trouble being able to talk and express my thoughts. I was aware that I wasn’t making sense and it frightened me horribly. Now, over 5 weeks later I am left with no energy at all and my sense of balance is off ~ I just feel generally awful. I’ve suffered severe pains in my jaw and legs. This drug should not be used!
I had the Reclast infusion on December 17, 2008. I have never ~ ever in my life been as sick as I was for 4 days. High fever, complete confusion, unable to walk without help, had trouble being able to talk and express my thoughts. I was aware that I wasn’t making sense and it frightened me horribly. Now, over 5 weeks later I am left with no energy at all and my sense of balance is off ~ I just feel generally awful. I’ve suffered severe pains in my jaw and legs.
I got infusion of Reclast almost a month ago. Two weeks later I had severe pain in knee that went away in two weeks. NOW I have SEVERE pain in back and hip. Cannot walk hardly. I am bent over in pain. Pain med does not even help it. I am crippled!!! Now what?
I had my infusion in March 2008 and I’m still suffering with shoulder, wrist, fingers, hip and ankle pain. My fingers and wrists are swollen and it is very hard to use my fingers. Reclast has ruined my quality of life. Now I have osteoarthritis thru my whole body. Never had a touch of arthritis before receiving this awful drug. Pain can be severe at times still. Already spent 3 months in bed as I couldn’t move. Pain med doesn’t help much. What are we to do
I got infusion of Reclast in December 2008 and experienced no side affects until a few weeks ago. Now I know I have some osteoarthritis & scoliosis, but have never experienced pain so severe & disabling. I haven’t altered my routine in any way & haven’t suffered any injuries so the only thing I can attribute the change to is that Reclast infusion. I’m trying (despite the pain) to keep doing yoga stretches and tai chi to keep as limber as possible & to drop the extra 10 lbs. I seem to put on every winter. I agree, pain meds don’t help much at all.
I had my reclast infusion a week ago today. Two days after that I experienced low back pain and now I can hardly move. I’m 56 and I feel like I’m 86. I can barely walk and my doctor’s office has not returned my phone calls.
I had to be out of town last Thursday and Friday and it was agony to get up-and-down from the bed or even a chair. It’s only getting worse. I’m using heat therapy, OTC meds and nothing works.
I’m sorry I ever had the treatment.
My Dr. is trying to persuade me to get Reclast, as I could not take Actonel. It gave me Acid Reflux. I hace cured it after 6 mos. with natural vinegar, 3Tbsp a day. 1 before each meal wth a glass of water. I am so glad I have read all your experiences with this Reclast. I am not going to get it. I do have a bad case of Osteo, but I can deal with that better than more pain. Thank you so much, & may God bless each of you for your honest information to help others.
Beverly
I was searching the internet this morning looking for side effects of Reclast infusion which my dr. is insisting will be the only “cure” for my osteoporosis! My numbers really aren’t that bad, especially when you look back over several years… one year I actually improved!… but the doc said that was a fluke… they have an answer for everything! He said my bones are so brittle that I would be in a sad state of affairs if I fell… well… I did fall about 2 months ago, bruised some ribs and my knee quite badly. Didn’t need medical attention… what would they tell me?… oh, you bruised some ribs and scraped your knee. Anyway, I didn’t bother telling doc about the fall… he would have called it a fluke that nothing broke! So, he is insisting that I have this Reclast drip, but now after reading everyone’s testimonial, there is absolutely no way I’ll have that done to me. I have enough pain with arthritis in my knees… I don’t need any more pain! And yes, I’d love to see the docs and nurses get this infusion… it might make them think twice about prescribing it to their patients. Thank you ALL for your candid remarks… I’m so glad I stumbled on this website! Gina
hair loss
I took reclast five days ago, and I feel terrible. My back hurts; my neck hurts; I am having terrible headaches. I have just been going home and going to bed and I can’t hardly get out of bed. I will not take it again.
Just heard from the dr an hour ago that my latest dexa scan shows more bone loss but still in the osteopenia stage. She is recommending Reclast. I was taking Fosamax until last year when severe pain in my upper right side caused me to stop. After reading all your stories I have no intention of taking Reclast, not worth the risk but I thank all of you so much for being so candid and helping those of us that are on the fence to make a decision.
I took Reclast on May 6, 2009. Had first low back pain one week later. It has lasted one week. It seems to be receding somewhat. Don’t know what to expect next. I won’t take Reclast again.
I had reclast two weeks ago. I now have severe back and shoulder pain and am taking celebrex for the arthritic pain I am experiencing. I would never take it again. I have been back to my doctor and he is going to file a complaint with the drug company. This is no fun. I hope I get better soon.
I am so sorry to hear so many of you are having adverse reactions to Reclast. I had my infusion on Oct. 16,08 and was in the ER AM Oct. 18. Because I have RA the doctors contributed the pain to an RA Flare. I told them it was not and that I thought it was due to the Reclast,the doctor then spread his arms and shrugged his shoulders,gave me a shot for pain and nausea and sent me home to follow up with my rheumatologist, of whom was too booked to see me that Friday. Makes you really feel cared for. Long story short, I was home for the next 10 days with pain that went for one part of my body to another. Since then I have had four other bouts of pain.This last week being the worst. Scares me of whats to come. All I can say is any woman out there that’s contemplating taking Reclast, think long and hard. When we say the pain is extreme and debilitating we are not exaggerating. Good luck to all of you that know what I am talking about, May God Bless you with no more pain.
I am anticipating doing Reclast soon. I have done Actonel and Fosomax and now I am ready for Reclast.
After reading all of these horrible side effects to this drug, I am very scared and concerned.
Thanks for your help.
I had the Reclast infusion on 02-18-1009. Twelve days later, I experienced a heart attack. While in the hospital, extensive Pulmonary Emboli were discovered in both lungs. I spent 28 days in the hospital and have been under several specialists care every since I was discharged on March 30, 2009. At this time, I am on O2 24 hours a day and I have pain in almost every part of my body. My joints hurt and I also have deep muscle pain.
I wouldn’t recommend Reclast to my worst enemy.
I had the injection two days ago and have had flu like symptoms since yesterday.
I took the Reclast infusion one year ago and had 1 day of flu-like symptoms….body aches, fever, chills, lethargy, etc. I told my doctor about it and he gave me some Zyrtec tablets to take before my second infusion. I will have it in a couple of weeks. I am so sorry for those of you who have had long-term symptoms. In a few months I will have another bone scan and I hope that an improvement will be seen.
I had the injecton one week ago and was really sick for two days and now I have joint pain in my knee and can’t bend it and my wrist and shoulder and ankle and back hurt too.. I hope it goes away soon, every day new spots are painful. I won’ t take it ever again.. If you do take it, drink a lot of water before and after taking it, I heard after the fact that that helps. Good Luck
OH MY GOD! I wish I had never had this infusion in Dec. 2008. I have had 2 TKR, 2 neck infusions, 1 lower back infusion because of DDD, this was before the Reclast. Now these areas are so painful I can’t walk, bend, sit,sleep or do any normal things like put on my clothes. No doc. will listen to me. no pain killers take the pain away. Dose this8s stuff wear off in a year? Will I be back to normal. Someone HELP me understand whats happening. At 69yrs. old I do not want to spen my remaing years like this. Whould you?
I had the injection On June 30, 2009 and the following morning I got up in lots of pain and feeling absolutely awful. My daughter had to help be back in bed,my temperature went up to 103 and I also had a terrible headache. Today is July 5, the fever is gone but I am in excruciating pain in the muscles, bone, neck, knees. I still have flu like symptoms, headache and my right thumb is swollen and hard to move. I will call my primary care physician tomorrow (Monday but am wondering how long this will last.
might consider these approaches too.
http://www.lef.org/magazine/mag2009/jan2009_Vitamin-K-Protection-Against-Arterial-Calcification-Bone-Loss-Cancer-Aging_01.htm
http://www.vitamindcouncil.org/
strontium
augily,pain that i never had it is still here even its been almost a yearr me and my famveafter haveing the reclast my life has been a living hell fo26,2008 i had reclast i was 43 and very acti
I was just given diagnosis and options so now just checking it out. What woman would agree to this drug after reading all these horror stories? What in the world is going on? Needless to say I will not choose to have an infusion. Very scary. I’m so sorry for those of you suffering.
I had Reclast Drip about 6 weeks ago and about 3 days afterward I started icthing on my extremeties. My doctor has given me itching pills, then a pack of predisone tablets for 7 days. It has been 4 days since I finished taking them and I am still itching now. Has anyone had this reactions to the drip? Please let me know if you have. My next step is to go to a skin doctor.
Has anyone had a second infusion of Reclast? Supposedly the side effects are less severe the second time around. I had horrible flu-like symptoms the first time around, thought I was going to die, missed work, etc., and got no help from my family doctor. Now my doctor is recommending that I opt for Reclast again, and I’m waffling.
While doing research regarding my symptoms, I came upon this website. I never have replied on the internet but could not keep from doing so at this time. I am an active 54 year old woman and feel and move now like my 83 year old mother. I had a Reclast infusion the end of October 2008. I would never have taken this drug had I had the information on this website. My chest bone ached terribly when I breathed the first few days. For 3 months I experienced lower back pain, as with a fever, and constant chills for 4 months. Chonic joint/bone pain have continued. Doing simple everyday tasks has become a challenge, and I find myself in tears at times. I have had swelling of my hands since mid January and can no longer wear my wedding ring. I also experience swelling in my feet and my shoes are tight. I had minimally intrusive knee surgery May 1st to remove a tiny bite of torn cartilage, and the swelling has not subsided. Squatting is no longer an option. My understanding is that this drug causes increased inflamation in the body. I am so sorry for the suffering so many of you are experiencing. Absolutely no possible benefit of increased bone density would outweigh the side effects that seem to be getting worse than better. I am so sorry I took this medication and would recommend that no one EVER even consider it, not even oral bisphophonates. My research, including that of consultation with a nutritionist who works at a local pharmacy is: eat well, take 1,500 mgs. calcium citrate daily along with 800 mg Vit D 3, and possibly a supplement of Vit K ( if necessary) for at least maintaining your current bone density. I wish my physician, who recommended this treatment, was a well informed as so many of those of you who have replyed. May we be a WELL informed pubic, learn and share our experieces/mistakes and vow never again to be so trusting of our physicians.
I was thinking of having the Reclast infusion after being diagnosed with bad osteoporosis…..however, after reading all the bad reports here I am not going to have this treatment…I will try a nutritionist who may have other treatment..
Thanks all of you for your replies on taking this drug..
After being online most of the morning, 7/28/09, I am making a decision not to do my Reclast infusion scheduled for tommorrow. IF the side effects happen to me, it is too late, but life goes on for my doctor. I have been in that small percentage of people who have had side effects with “FORTEO”, “elevated calcium levels”. So I had to do shot every other day but it did not make a difference in my latest BMD report. I used to be on Foxamax which started a positive change years ago but I stopped it. I do have GERD as a result, but compared to these other side effects with Reclast that is minor. Google in Vivian Goldschmidt, M.A. that I discovered today. An interesting and educational read. violition
Reading through more of your comments. Gina Bruno, don’t under-estimate the temptation some doctors have to receive all those perks the drug companies give doctors to push drugs like Reclast.
I am glad I came across the woman who cured her GERD with pure vinegar. I remember someone mentioning that a long time ago and I dismissed that thought. Thank you.
I had the Reclast 2 days ago and feel like I’ve been hit by a truck. I super hydrated myself and took ibuprofen but for the past 2 nights have been waking up shaking violently and in terrible pain. Last night I was also nauseated. My symptoms are much worse at night and I wonder why. How long will this last?
I had Reclast and didn’t experience any side effects at all. I’d like to see some more posting from people who had my experience. A number of my friends have had the infusion–one had a slight headache–but the rest were like me–no problems at all
I’ve had a slew of side effects from antipsychotics. I’m not psychotic- they use antipsyhotics to treat Tourette syndrome. First ones: lexapro caused the beginings of suicidal ideation and stattera (for ADHD) caused agitation.
risperdal-drowsiness and sedation, fluphenazine-acute dystonic reaction (scary! body twisting uncontrollably with intense, painful muscular spasms) abilify-vommiting, Haldol-dyskenesia, Topamax-sedation and suicidality, Seroquel-rage and mania, Risperdal-(higher dose)akinesia (inability to move) acute dystonic reaction, withdrawl dyskenesia, strange inability to speak coherently (words came out in gibberish)
Moban-dystonic reaction, emotional distress, sound sensitivity, akisthisia and dyskenesia
I’ve been to the ER multiple times over these side effects. Particularly, I was almost involuntarily committed due to the depression from the Topamax!
I’ve decided not to take any more antipsychotics. They have caused a lot of trouble and taken up a lot of time recovering from dangerous, scary and painful side effects.
I had reclast exactly one year ago, having taken fosomax for a few years and hated it and told my Dr. I didn’t want it anymore. Since having the reclast I have had severe pain in both shoulders that makes it difficult to lift things or reach up. My arms have been very strong all my 89 years. I have depended on them for everything and could not figure out why they suddenly gave out on me this past year. Having read the above experienes It sounds like the reclast may be responsible. When I see my Dr. on Aug. 14th
I shall ask him to forget the reclast and other medication. I’d like to live out my last few years as free of pain as possible !!!
I just had the reclast 3 weeks ago.It seams ok until 2 days ago, I feel short of breath.- I had heart effusiond last year and it has been getting better. My Dr. advise me to take the “reclast, once ayear” without telling me about those horrible side effects. Now, after reading all your reports. I really scare: if the side effect would be only short times, it won’t be that scare. I am afraid that that side effect is permenent!!!! Like one writer said:” if it is takinga pill, we can stop taking it; but, this is for atleast one year, we can not stop it. I am wonder why FDA and those DR.s not warning us. We truth them so much, suddenly… like this! Where are the good Dr. do????
Had relacast a week ago and not I am on crutches, my right knee is so swollen I am unable to walk. Called the dr. to advise her of my pain and I was told to contact the dr. that was taking car of my knee. I will not take another infussion.
It has been almost a year since my partner had the infusion of reclast. Initially she had a horrible reaction-fever,chills,muscle aches,joint pain. She seemed to do better after that,but periodically she keeps breaking out in horrible whelts,and rashes,followed by a lot of joint pain. We cannot figure out the rashes;there is no ryhme or reason as to when she breaks out. I have read rashes can be one of the side effects,but haven’t read here about anyone complaining with rashes. Is there anyone else out there having unexplained rashes? We have spent a lot of money on dermatologists,allergists,etc,but I believe now that the reclast is responsible. It is almost time for another infusion,but I think she will be skipping it!
Thank God for this WEB site. I had my Reclast infusion on 09-09-09 at 11:00AM. I went back to work that PM with a positve attitude ( I am a nurse in a physician’s office). I awoke at 11:30PM with hard chills and random body aches. Bones,joints and muscles. One quilt warmed me enough to doze only to awake in a fiery nightmare
of skin burning skin where they touched. I could continue with more details but even now it is hard to relive. At 9:00AM I could barely speak to tell the receptionist at the rheumotologist office I was having “flu like symptoms” and needed to speak with the nurse. When I spoke with the nurse she did not ask one question to verify my symptoms but immediately told me the Dr. wanted me to take 2 Tylenol every 6 hours for 24 hours and call back in the AM to let them know how I was doing!(Evan though I was told they had never had anyone have side effects?) It has been 10 days now. I missed 2days work and had the weekend before going back and I still wake up with head rush and heat in my spine. I still have transient minor bone pains in jaw and cheek. I pray that I will not have a year of more surprises from this horrific experience and I really pray for those already suffering. If this entry prevents only one person from going through what I have, it will be worth my time and effort. Had it not been for this WEB site I may have thought I was one of a kind and indeed did wonder for a while if I had been give the wrong medication. It is now quite apparent to me from these stories and other information I found on Reclast side effects that we are just not being given the full story up front.
I so wish that I had read this website before I went two days ago for the infusion. I will say that my husband had the infusion a few months ago and never had any reaction. I was not so lucky. I had the infusion in the morning and actually felt fine all day. That night, howver, I woke up with the worst headache I think I have ever experienced, the chiils and shaking, every bone and muscle in pain. I could hardly move. And I was so weak. Hardly got any sleep at all. The next morning I laid in bed with an ice pack on my forehead and a heating pad on my back. Also took some advil. Finally was able to get some rest. Still felt weak all of that day, but slept very well the second night and today has not been that bad. I have had pain in my big toe today, but not sure that could be from the Reclast, although have never had that before. I just hope that is the end of it, but from reading past posts, maybe not. One thing is for sure…I will not be back next year for the 2nd infusion!! Thanks to all for sharing your information.
I had reclast October 14 2009. NEVER AGAIN….. I am 44 . I threw up right after, and off and on that night. The pain in every joint, and Im so sore I cant stand it. Had the chills. I walk like im 90 now, Im so stiff. Serious think about it before you get the infusion. I drank fluids before the infusion. I read it helped, I would hate to think what if I had not drank fluids. I wished I had thought more on this. I was an idiot, I am one not to make jump descisions, but I let my guard down.
Thank you all for your posts. I was encouraged to take this drug a few yrs ago, but felt pressured by the doc and nurse…I belived I mifght be their 1st patient to try it, so turned it down, Recently broke my foot and now am being advised again to take something. The pills do hurt my esoph. so don’t take those. Was truly considering the reclast. Thank you all so much! I have fibromyalgia and react with lots of pain after the reg flu shot but that goes away after a month and is well tolerated. Reclast sounds like my worst nightmare. I will not even consider it. Again, thanks everyone.
I am a 65 year old female with osteopenia. I take Fosamax but my doctor said it is not working after my recent DEXA showed a decrease in bone density and wants me to take Reclast. After reading all the posts, I am not sure if I should take it. Any help is appreciated. Thanks.
My Mom had the reclast done on WED 16 2009 she was fealling fine on thursday on friday at around 6 PM she said she was feeling light headed and sat down at 630 PM she became unresposive and I called 911 when the EMT;s arrived her blood preasure was at 75 the got no lower number also she lost her eye sight ands was very confussed and had sevier back pain they took her to the hosp and the found out that her potasume and sodium had bottomed out they did all sorts of test for the cause but found nothing after spending a night in the hosp on a IV for potasium she was back to normal she askede if it could be the raclast but they said no. She went to our famliy doctor and he agreed it was the reclast. I would advise for nobody to take this with out a lot of thought and 911 standing by.
I had my reclast infusion Feb 5th 2010. By Feb 10th I hurt in my bones and could not move my neck. My toes even hurt. I had two friends that had the reclast infusion with no side effects. I have never had any side effects from any drug or procedure before so I thought no big deal. Well it is a big deal and I hope these side effects do go away if not my quality of life has surely changed. To bad I did not read about reclast before the infusion.
I was scheduled to have Reclast IV this afternoon at 3pm. At 1pm I called and canceled…no way will I put this garbage into my body….I read all reviews on many sights…omg…deaths have occurred.
Scary stuff…will stick to good diet, calcium, and weight bearing exercise.
I had a reclast injection as well, on NOv19. I was in the hospital on the 20th with the worst pain I had ever had. It is now Feb 2010 , I have been back to the hospital, Dr. office several times and no one will help. No one has the answer. This has destroyed my life. My body hurts to the touch, headaches that are killers, joints, bone pain. Please do not take this bad drug. Does anyone have a clue of how long this will last or suggestions to cure it. My vitiam D level also got very low after taking this.
When I read the feedback here I feel compelled to remind other readers that you normally get more negative feedback than positive – naturally, because those are the people affected the most. I had only one side affect that my ankles were swollen with some joint pain. I took an antihistamine and that went away. Nothing else. I too, as did one person above, drink plenty of fluid before and after the infusion. I did so because that’s what the instructions said to do. More people need to be sure they read all preparation notes – and drink lots of water around your appointment. I had my first Reclast infusion on April 28th, 2009. I plan to have my bone density tested again in early April, and then do my second Reclast injection.
had my first infusion this past Friday. Felt good on Saturday. Sunday I awoke and expercienced vertigo. It stopped after a few minutes. I felt very tired all day and slept quite a while. Feet feel a little swollen, but I have not experienced any other side effects so far. Must admit the articles I have read are very alarming. I pray that I will be one of the lucky ones that will not have some of the many side effects as those mentioned. I do have RA and joint pain has been a problem before the infusion. Does anyone have any good results to mention?
Had Reclast infusion,One hour drip on Feb.24th of 2010…..OMG!! I feel absolutely Horrible,Back pain,joint pain, Severe headache,nausea,swelling and itching! I am a moderate RA patient with crohns and while I am alarmed at these side effects I am also feeling better that I am not the only one experiencing these! Definately scary!!!Will definately pause before doing this again!
I had my only infusion of reclast on July 29, last year. At first, other than a minor headache, I seemed fine. Within the next few months, many days I could barely walk. To date, it hasn’t changed. My ankles and hands swell terribly to the point I am unable to wear shoes and my wedding rings. I have NEVER had this problem til Reclast. The pain is tremendous. I have the worst pain I have ever felt in my ankle, calf, knee joint, thingh, hip and lower back. It is bad almost every day, but some days it subsides slightly enough to get some things done. Other days, it is so bad, I cannot get in or out of a chair without help, and driving the car is nearly impossible. I hurt all the time to some degree, which is so different from prior to having the Reclast. I have not seen a physician regarding these symptoms, because we moved and I am in the middle of an insurance change which has prevented my seeing anyone til now. I will be seeing a doctor in about a month, and since it is a new doctor, it is going to be really hard explaining how these changes have affected my life and how they showed up only after reclast. I am hoping to get a caring physician who will listen to my complaints and do something to help me thru this. I have a lot more symptoms which showed up since last July, but the worst are the ones which prevent me from carrying on as usual. I have the worst timem ever going to the grocery store, I can make it around the store leaning on a cart, but by the time I am done, I can barely make it up to check out, then out to the car. I cry with pain almost every day. This may sound extreme, but I am experiencing it right now as I do every day to some degree, and it has changed my entire life. I used to be very active until a few months after my Reclast infusion, but now things are entirely different. I am thankful for having a loving and caring husband. He has seen the change and knows when it began and how it’s progressed. I encourage anyone who is considering reclast infusion to rethink their decision. Hopefully after this year is over the Reclast will wear off and life will return to normal. It’s yet to be seen.
My doctor suggested Reclast as I would not do the Forteo injections. I was ready to set up the appt. after reading the material he gave me. But, I thought, maybe I should check out side effects on line. WELL, I am so glad that I did. There were very few positive remarks made by any patients. THe side effects were horrifying. WHen the doc’s office called back to schedule my infustion, I told them to forget it. I will try to get back on Actonel and keep up with my calcium and Vit. D and exercise more. Nothing could be worth all the pain and suffering I’ve read about.
My doctor has recommended reclast and I did not think to much about it, but then got to thinking about side-effects after seeing the TV report on several of the osteoporosis meds. I checked on this on the internet, then I called and cancelled my appointment until I can discuss it more fully with my doctor. After reading these reports,there is no way I will have the infusions. I worry about not listening to my doctor on these matters,
but sometime we have to take a little responsi-
bility for ourselves when hearing about these
complaints.
I had reclast 3-18=2010, I came home and took a nap and found my shouders frozen and my chest bone in tight, in severe pain and unable to draw breath especially on the left side. I began to have severe chills. My fever quickly rose to 104. I am 63 and well oriently, but I was completetely confused. My family called the clinic and asked them what they should do. They said there was no possible way it could be a side effect of the reclast and that A senior woman with a temp that high needed to get to the emergency room immediately and get iv antibiotics. I am a retired RN and I had a sneaking feeling that it was the reclast. My family kelp begging but I never felt my life was in danger. I vomited several times. MY fever came and went and I had a miserable couple of days. Even now my left shoulder is is terrible pain and I have difficulty moving it. This never occurred before I took the reclast.
I had a reclast infusion Jan 21, 2010. Within 1 hr I was feeling very sick. I started having a temp in just a few hours. I had chills and temp for 3 days and felt like I had the worse case of flu that you could ever have. I also had severe pain in my back. My eyeballs even hurt. I have IBS, and my stomach has been swollen since I had this infusion and hurts all the time. I continue to have pain in different places all over my body and am in so much misery. Does anyone know of any way to get relief? I would never recommend this to anyone!
I have been on long term prednisone use due to sarcoidosis. This has affected my bone density and I could not take boniva pills due to severe heartburn. I was given boniva infusions with no side effects after any of the three month infusions. My insurance company decided (for me) that they would not approve Boniva infusions any further and would only cover Reclast. I had my first infusion several weeks ago and have been miserable ever since. I was having periods of confusion and body aches. What not many people are mentioning and I may be alone, but I am nauseous every day. I take omeprazole twice a day, and now take Tums to try and control the nausea. No matter what I eat I feel sick and the only connection is it started after the Reclast infusions. I am miserable, always feeling sick and hope this doesn’t last a whole year. I will not have this infusion again unless my bone density scans get worse and there is no other option. Would recommend consulting your physician and asking questions before proceeding, which I did not, I just followed their orders.
I am really scared. I just had my infusion on April 28th. I took my gynecologists advice and took the infusion without reading a word about the side effects, a terrible mistake. I had mild flu-like symptoms on the 2nd day with racing heart, tight feeling in the chest and some difficulty breathing, felt fine the 3rd day and now on the 4th day I am lethargic and still have the tight feeling in my chest. I didn’t drink a lot prior to the infusion. The nurse gave me a bottle of water to drink during the infusion and because she thought I hadn’t had enough water, she gave me a saline I-V afterward. I haven’t experienced any of the bone pain but will be on the lookout for it. From all the negative comments, I wonder if anyone has seen any improvements in their symptom/side effects and chose to blog about it? I sure would like to know that things have improved for most of you……I’ll check back later and tell you how things are going.
my mom is going to have her Reclast infusion done next week for the first time. I am researching all the websites. Your comments have all been helpful. However, please give us more positive reports especially on its medical advantages. Thank you.
I had my first Reclast infusion in November and have had no side effects. Plan to repeat this fall.
I had the Reclast infusion 6 days ago. After 2 days I experienced back pain. But yesterday, at work, my heart began racing, and I thought I was going to pass out….in front of my students! It calmed on its own, but it terrified me. I couldn’t figure out what in the world caused it. Then I looked up side effects for Reclast and found it was listed as a “rare” side effect. This is pretty scary.
Ladies, I can’t thank you enough for saving me from so much potential agony. I am going to cancel my 5-14-10 appt. for my first Reclast infusion scheduled by my oncologist. Thank G-d I found this site!! Being that I already suffer from a non-specific vascular collagen disorder that causes intermittent joint swelling and pain, I would have to be crazy to subject myself to these potential side effects. The only honest info a patient can get is from other patients! I guess it’s back to Actonel for me, though I discontinued it due to the acid reflux I’ve developed that is so severe, it has impacted my vocal chords. At least I’m physically functional, and I’d like to keep it that way, so as soon as I sign off I’m going to cancel my infusion appointment. Thanks again, and I wish you all better days ahead.
I had my Reclast infusion May 26, 2010 and have not been the same person since. By evening of that day I was beginning to feel ill – chills, achy, headache. In the middle of the night I experienced the worst chills of my life that continued for the next 4 days. Total loss of appetite, no energy, extemely depressed. Then today, at 3:40 am I awoke to use the restroom and noticed the stool was full of blood. I waited till morning and by then it had cleared so I thought nothing more of it. We went out for dinner and when we arrived home I felt weak and used the restroom – totally a scary sight – the stool was blood red. We headed for the ER. After a urin sample the dr said I was experiencing the most severe UTI (urinary tract infection). Never had one in my entire life but if you look on the list of side effects ITS THERE! along with many, many others of which I do not have to experience. I will be calling my rhuematologist on Monday and report this also – I am so sorry I ever done this – if you haven’t already done so – please take a moment to read all the side effects connected with this wicked stuff that’s injected into our blood stream.
I had my Reclast infusion May 26, 2010 and have not been the same person since. By evening of that day I was beginning to feel ill – chills, achy, headache. In the middle of the night I experienced the worst chills of my life that continued for the next 4 days. Total loss of appetite, no energy, extemely depressed. Then today, at 3:40 am I awoke to use the restroom and noticed the stool was full of blood. I waited till morning and by then it had cleared so I thought nothing more of it. We went out for dinner and when we arrived home I felt weak and used the restroom – totally a scary sight – the stool was blood red. We headed for the ER. After a urin sample the dr said I was experiencing the most severe UTI (urinary tract infection). Never had one in my entire life but if you look on the list of side effects ITS THERE! along with many, many others of which I hope I do not have to experience. I will be calling my rhuematologist on Monday and report this also – I am so sorry I ever done this – if you haven’t already done so – please take a moment to read all the side effects connected with this wicked stuff that’s injected into our blood stream.
I am researching Reclast for my 89 year old Mother.
First I would like to say my prayers and best wishes go out to everyone who has experienced these terrible side effects.
Second, I would point out that the clinical research on Reclast does indicate the side effects experienced by patients who have posted here, but in a minority of cases. According to the clinical research, only about 1 in 5 have any side effects at all, and those that do, the side effects usually only last 3 days with some lasting 7 to 14 days.
Third, I would point out that this is a website where people post their side-effects, so if a patient had no side effects it is very unlikely they would search out a website to post on.
So although the side effects posted here most likely occur in a minority of patients, they seem to be severe and debilitating, causing much concern about recommending this to my mother.
To put it in perspective, I believe it is somewhat of a crapshoot, with odds in favor of no serious side effects, but a good chance of serious side effects.
With my mother’s age at 89, and as much as 70+% loss in bone mass density, this becomes a quality of life issue. She is already in significant pain with her spine.
I had a Reclast injection in Nov 2009 . I was alright through Dec butin January , things began to happen . My robs started to hurt , I got a boil under my left breast that had to be lanced and drained . that healed and in February , my spine and hips hirt . That subsoded . March , my upper thigh joints ached non stop . April my knees hurt , May I got something like bone spurs on my feet similar to bunions . I still have them and it is like walking on marbles . June , my fingers locked on me . July , my shoulders and back ached non stop . I wonder what will ache in August .My year will be up in Nov and I already informed the doctor that I will not be taking another injection . All I hope for is the aches and pains stop when my year is up in November I should have know that being Reclast was only out for a couple of years that I should have been more cautious . I am 78 years old and hope I never have to go through such an inconvenience again . I would not reccomend this IV to anyone . I was wondering if I should report these accounts to the FDA . I tried to call the company Novartis , but they have a European phone number .
After canceling my initial appt for the Reclast infusion because of all the side effects that I had read about on the internet, I decided to have another talk with my rheumatologist. He convinced me that Reclast was safe and effective, so I went ahead and had the infusion in February. About 3 weeks later I started with hip pain, which I never had in my life. Both sides are affected, but the right is the most painful. I have been back to see my rheumatologist and he says that there is no way that the Reclast could have caused this. I think otherwise and will not be having a second infusion next year. I am in pain every day now and Aleve and Celebrex do not help much. I’ve also had cortisone injections in both hips and that helped to relieve the pain for about 2 days, so I won’t be getting any more of them. The doctor says I have bursitis of the hips, but for this to just start out of the blue with no aggravating factors befuddles me. I am blaming it on the Reclast infusion.
–see post 3-20-10==Later on that evening my condition worsened, I became confused, fainted, hit my head, and was out of it. My family called ambulance and I was admitted to ICU. Emergency room doctor said if I had not gotten there when I did I would have died within one hour. Reclast caused my kidneys to stop functioning. I was unconscious for four days and had to undergo dialysis. I was in hospital for two weeks. I did get my kidney function back. But a week later I passed 9 kidney stones. Now, my pancreas has stopped working and I am on insulin. I also have horrible arthritis in all parts of body. It is not getting better. This drug nearly killed me.
Had my first Reclast in August of 2009. Went home and resumed normal activities and really forgot I had had it. Had NO ill effects at all.
August 2010… I have been going through chemo for reocurring Br4east CA this 3x with ling mets.
Oncologisdt said it was OK and would be beneficial along with my chemo. Had my injection on Tuesday and Wednesday night I began running a low-grade 100.5 fever some flue-like achiness and chills (very cold) my house was at 76 and I was in a jacket and quilt. Took acetominiphin abd did sleep OK. THis morning, I am TIRED but could alsobe be due to the chemo. I feel the good FAR outweigh the few side effects
well i had gotten my first injection in jan 2010 It is Aug of 2010 .At first i got headaches and weak feeling.2 weeks later i had such bad pain in every joint.I do have fibro but this has become so intence i cant take it .I have written the company and let them know.I have just gone to my Dr and she said it was a safe drug i told her mabey she should go on the internet and read the horror storyies today is aug 23 2010 and sat evening i had to go to hospital with terriable kidney paini only have one kidney and cant affored to mess with it.as far as i am concerned i will never take one of these drugs again
A friend of mine had reclast and never complained then she had another a year later and 3 months after that she died from some form of bone cancer and I was wondering if reclast could have caused this. She had several blood transfusion but her blood count would never come up because the cancer in her bones attack the blood before it could build up. I don’t think I would ever have the reclast even though her doctor said it did not cause the cancer.
I see this comercial every minute on TV about Reclast medicine ,and when I saw all u coments wow ,I say what wron’g with this farmacos companys that is repoff,and I giving a advised in me personal experienced with pains to every one do a little exircise a least 30 minutes evry day and take Alive to gelcap evry 2 day and u can get a lot feel well of better life..
I read all of your comments prior to my first Reclast infusion a week ago. I was terrified, but I didn’t feel that I had a choice. I fell on March 27 and shattered my patella into 15 pieces and broke 3 ribs. At that time I was taking Fosamax, calcium, Vit. D and working out with weights. After the surgery to reconstruct my knee, the orthopedic surgeon said that I had the worst osteoporis he had ever seem. So, obviously, the fosamax wasn’t working. I have other medical issues (I take levothoxin, metropol, and other drugs for cholestorol and roseacia).
One week after my infusion of reclast: I AM TOTALLY FINE. No side effects (and I was so scared from what I had read). I am sad about the women who could be helped by this drug and are refusing it out of fear….
God bless you all and hope that your issues resolve. I have had a good response to this drug and now I don’t fear falling like I did a week ago.
I had a Reclast infusion 2 weeks ago. No side effects at all! I am 59 and had uncontrolled osteoporosis. I was taking fosamax, vit. D and calciun and still had BAD osteoporosis–we know because I fell on a sidewalk in March and shattered my patella and broke 3 ribs. Ouch. My orthopedic surgeon (who operated to reassemble the 15 pieces into a wired-together kneecap) said my osteoporosis was like a 90 year old.
I am thankful to have this medication to help my bones so that I don’t have to live in fear of another fall.
Please don’t rule the Reclast out based on the comments here. I am not saying that the comments are not honest and real, I am saying that people who are suffering come to these sites to complain about their side-effects. So the comments are skewed toward the negative. Those of us who have NO side effects don’t bother to comment. I am back at this site to tell the people who are wavering that 80-90% of people who take Reclast have no problems and most of the ones who do have side effects, they only last a few hours and are ‘flu-like’. Don’t deny yourself a medication that most likely will work well for you because of the comments of the minority of people who have taken it. I know it is scary, but be brave!!!
Yesterday, Sept 23, 2010, my rheumatologist perscribed an infusion of Reclast. I’m not sure whether I will undergo the proceedure after reading this site. I am going to do a bit more reading on the drug and talk with my dentist about jawbone side effects are a concern for me.
I had infusion on 9/22/10 in the am was fine until next morning, woke up with severe pain in arms, and upper body! chills, fever 103, headache, fatique and just feeling awful, stayed in bed for three days, joint pain finally subsided, called my dr went to see her and she seemed shocked that I was sick! (go figure)! well she gave me some kind of pills that I diddn’t take and after a few more days in bed finally made it back to work! but, never again! not worth the pain!
I have osteoporosis and several other diagnoses that lead to a potential autoimmune disorder. I also have myotonia.
My MD was irritated when I told her I didn’t want to take Boniva because of my own GERD issue (with erosion) and my familial history of esophageal and stomach cancer. She suggested Reclast and was irritated when I declined. The thing is, she didn’t go over any side effects with me on either one. It was only after reading about it myself that she ho-hummed about the rare possibility of an adverse reaction.
My thing is that I don’t tolerate many meds well at all. In fact, my NEW doctor, was surprised that I don’t take anything except articifial tears for my chronic dry eyes. He thought I might benefit from reclast, but my argument is that I already live with chronic, severe pain and a suspected autoimmune (collagen) disorder. And then there is the myotonia, which causes the muscles to have a delayed relaxation after contraction. This also causes pain and the underlying cause has not yet been found. I just don’t think I will risk my life, or my health, for this drug that clearly doesn’t offer enough information to patients.
I understand that this drug helps some, but has everyone read how Reclast works? Has anyone read that it is now proven that it can cause bones to break if taken for too long? Has anyone read that it can actually stop your own bodies ability to create any new bone at all–which means you will have to depend on Reclast for new bone? Furthermore, this new bone that Reclast is making is not necessarily strong bone. Here is a great article on the Better Bones, Better Body website: http://www.betterbones.com/osteoporosis/osteoporosistreatment.aspx
It is a personal decision, but I think that more studies need to be completed before this is thought of as a miracle drug for everyone. I have a concern that this drug is over-prescribed–even to women who only have osteopenia that could be reversed by diet and exercise. I don’t think enough studies have been done on people who have certain underlying conditions like arthritis, fibromyalgia, autoimmune disorders, various myalgias and neuralgias, etc. I think if someone is already dealing with chronic pain and there is the potential for more pain, the patient has the right to know. My former MD didn’t say boo about any side effects at all, except for a possible rare problem that involves the jaw.
I am glad I’m an aggressive patient. I won’t touch Reclast.
I had the infusion in September and experienced a couple days of flu like symptoms. nothing negative since then…
I had Reclast infusion in Sept 2009. Four days later I developed severe leg spasms, muscle twitching in both legs and both legs felt like they were burning up on the inside although the skin was normal to the touch. At first I didn’t connect it with the Reclast (duh!) but after seeing my MD, having multiple blood tests, being treated for B12 deficiency, taking meds for restless leg syndrome and finally 8 months later, being referred to a neurologist, he determined my CPK level was abnormally high. He thought it was a reaction between the statin I was taking and the Reclast infusion. I stopped taking the statin. When I finally saw the neurologist, nine months after the infusion, the twitching and leg spasms had already become less severe. These leg spasms are not the kind that we all get in the calf of the leg but rather went down the side of the leg and twisted the foot inward.
As the year progressed, the leg twitches reduced although are still present 14 months after the infusion. I still feel the heat in my lower legs but it isn’t the feeling that they are burning up. The leg spasms now begin in the ankle and sometimes only affect the bottom of the foot.
The problem having an infusion is if you have a bad reaction, you are stuck with the side effects for months afterwards. The CPK level is coming down now and I am hoping to be able to resume taking the statin. I don’t know what I will do about the osteopenia but it won’t be another Reclast infusion.
I wish better luck to anyone facing the need for the Reclast infusion. Just be wary if you are on a statin and suggest to your MD that you have your CPK level checked before and after the infusion. And if you have any of these weird symptoms, you will have a clue as to what is going on.
Donna
Today is saturday and I took Relcast on thursday. I was fine all day thursday but in the early morning hours of friday I started getting chills. I am a 65 year old extremely active person and Reclast threw me for a loop. I was in bed all day friday – fatigued, achy, headache, nausea, and just all around feeling terrible. I HAD to go someplace friday night and got there and was so sick I had to go home. I feel slightly better today, but reading the comments of other and thier long term reactions has not made me feel encouraged. This may be my first and LAST treatment of reclast. Oh, and BTW, I have had a total loss of apetite. My mouth is dry and nothing seems to help it.
I had the Reclast intravenous injection on Oct. 28, 2009. My bones,muscles and joints ached for 3 or 4 days. About 6 days later my hands swelled up and hurt so bad, I had to have help doing even the smallest tasks.You can bet your sweet tooth I”ll never take another because I have continued swelling of my feet,ankles and hands plus severe pain in my left shoulder and upper left arm.
I had my reclast infusion a week ago. I was lightheaded as I left the dr.’s office and had flu- like symptoms for 2 days. Now, today, one week later, my knee is swolen and I cannot put weight on it. The only reason I had this infusion is b/c I had gastric bypass 18 mos. ago and now have osteopoenia and cannot take fosamax or boniva. I will take my chances next year…no way I will have this infusion again!
Took the infusion of Reclast on Feb.18th,2011. Next day flu like symptoms started. Following nite the worst chills and body aches. Took Advil and I felt better. From the 4th day on I realized the achy feeling in my legs have not gone away. Now it seems the Advil is not helping the leg pain. The legs also feel hot inside not sure its visible to the touch by someone else…just the way it feels.
On January 13,2011 I received the reclast infusion. Have flu like systems everyday. Wish I knew a way to reverse this side effect. I have been in the ER twice for ct scans of head because of severe headaches and they find nothing. Have upset stomache, severe leg, back,arms,and hip pain all te time. I have missed more time from work since January than I have all together in the last 10 years. I want my life back before reclast. Is there a antidote? This needs to be reversed or will it be worse than the infusion? All western medicine seems to be poision. Anything new on the market since1950 is better than all the research the pharmacitical companys have done since then. They are out to make millions. No wonder the health care is in bad shape due to the overcharging of medications. It was around $2000.00 to have this infusion that lasted 15 minutes. Is it worth it to be sick for a year or more. I will not have this infusion again even if I shrink to 2foot tall.
i am 73 yrs old and was on Fosomax for years. After a bone scan i was told Fosomax was not doing it’s job and my right hip showed thinness of the bone and Reclast was highly recommended with supposedly no side effects I was told. I just couldn’t believe taht and am so glad I found this web site. Just what I thought, the cure is far worse than the ailment and I will not be scheduling a treatment afterall. Thank you all for taking the time to tell me your experiences. God Bless each one of you!
I was diagnosed with osteopenia in 2007 with 16% bone loss. I attribute it to not taking enough calcium and other important minerals, and eating too much sugar. I vowed never to take a drug for osteoporosis, so I began to be more diligent about nutrition (eating organic food, lots of green leafy vegetables), taking my supplements, and exercising (mostly walking). In 2009 I had gained bone density to where it is now normal. My best friend also regained bone density. She is 66, I am 63. During the last year I have been taking a local Better Bones and Balance class, which has improved my strength and balance. Lots of sweat hard work is paying off, with only good side effects, and I feel so good. There are women in the class who initially have little strength and flexibility, but when they stay with it, they greatly improve. So I recommend starting with nutrition and high quality supplements, and begin to exercise progressively. You can get your life back! Osteoporosis is not a deficiency of Actonel, Fosamax, Reclast, or any other drug.
My wife (age 75) has had Reclast infusions for the past three years. And, for those same three years her health has continually declined to the point that she can’t exercise on her treadmill for 1/2 hour or so as she did before she started the Reclast infusions. She feels awful all the time, is tired all the time, can hardly walk more that a few feet without aid (walker,eg) or having to hold onto someone or a shopping cart, and has pain somewhere on her body all the time. All blood tests are normal so naturally docs say she must be depressed! Bull! I blame it on the Reclast, as before she started the infusions she was never like this and was cheerful, happy, and energetic. Now that is all gone! It hurts her to get out of bed, get out of a chair or to sit down in a chair. I don’t know how long the Reclast stays in your system, but after having the infusions for 3 years, she’s not about to get another one, which is due in a couple of weeks. Hopefully, time will heal her problems.
DON’T USE THIS DRUG WITHOUT FIRST DISCUSSING WITH YOUR DOCTOR, HAVING YOUR CREATININE LEVELS CHECKED, AND READING ALL ABOUT THE SIDE EFFECTS.
MY MOTHER HAD THIS TREATMENT LAST WEEK AND NOW SHE IS IN THE HOSPITAL WITH KIDNEY FAILURE!
She was sick with flu-like symptons for several days — vomiting, headaches, unable to eat/drink, and it made her dehydrated to the point of hospitalization. She had to have fluids intravenously and had to have a dialysis treatment!
BE WARNED AND FULLY INFORMED ABOUT THIS DANGEROUS DRUG!
I have had pain in every bone in my body since taking the 4th year of Reclast. My doctor did not tell me if I was in remission for Paget’s bone disease I did not need to take it. Now I have bone pain worse than I ever had previously and in more places. I just hope at the end of the year this has cleared up. Will not take it again. I feel as if it is poison.
My mother was 53 years old and she took what would be her first and last injection of Reclast in September of this year. She experienced severe pain, especially in her jaw. She died of a heart attack almost two weeks to the day of taking her treatment. Her autopsie results said that she had a diseased heart. No one even checked her heart before giving her the treatment. I heard that this drug can also cause vascular retraction….the doctor who performed her autopsie also said that her vascular system was shot. I know my mother smoked for many years but I think that this treatment was just too much for her body to take and ultimately was what killded her. I would have thought that the doctors would have looked at this before persuading her to take this treatment. I believe that this drug took my mother from me earlier than if she would have not taken the treatment. When someome is gone its too late….I am now left thinking if I only could have had one more day or one more month. And who knows how long I might have had….but any amount of time would have been precious. I just hope that if you are considering taking this drug you think twice. I know there are people out there who have been helped but in my case…..I lost my mother at 34. My sister lost her mother at the age of 24 and my 4 year old nephew lost his Nana. I only wish I would have researched this drug before she took it. Based on what I have read, I would have told her not to take the treatment.
Im an RN on Disability because of multiple vertebral fractures resulting from severe osteoporosis resulting from genetics and also smoking,too much sugar and the overuse of prescription pain pills which cause a low blood ph,whereby the body then takes calcium from the bones to get the ph back to normal. This is YEARS of abuse.Had Reclast infusion in Dec of 2009, no side effects until maybe now, 6 mos later.I have bad stabbing pains in both thumbs and ankles.I also am losing more height- I went from 5foot 6inches to 4ft.11inches. On pain management for the back pain. I will not take another Reclast infussion. I will now honestly try and cut out the sugar, caffeine and exercise. I take good supplements and vitamins. You never know the long range outcome of this medication. I feel that we all are human guinea pigs. God Bless you all especially the lady Carolyn B.
Fosamax didn’t stop the arrival of osteoporosis for me but it did mess up my esophagus so badly that swallowing food is very painful much of the time. So my doc recommended Reclast and with new hope I received the injection. That was six months ago and life has not been good since I received it. I had flu-like symptoms for the first three weeks. Then the pains in my groins and thigh bones started–and hasn’t stopped yet. My left foot is swollen in the area close to my toes. Bones in my fingers and thumbs sting and burn when I use my hands. My right shoulder is now very painful. There is a patchy red rash on my neck, chest, with patches of it on my forearms and calves. It is an insatiable burning itch. My headaches are immobilizing and often. Until Reclast and Fosamax I was pain free, and happy. I’ve enjoyed good good health for most of my 62 years. This depression that has landed heavily on me is difficult. Now I am angry, too. The only hope I have left is that maybe in another six months or so, maybe, just maybe some of this will go away so that dealing with osteoporosis might be a little easier. . .
I am so glad there is a forum where I can read all your comments about Reclast. My dr. has been bugging me to do this drip since last year. I dont think my bones are that bad and I already have bad jaw problems because of TMJ. Also, I have had fibromyalgia for over 18 years and I already suffer from severe joint pain, back pain, neck pain, headaches, muscle aches, shoulder pain and arthritis. It is beyond me why my dr, (who has to know about these side affects) would recommend a drug like this to someone like me!!!
I’ve just had my third infusion of Reclast (one a year) (I’m 60) as I have/had several medical conditions including steroid-induced osteoporosis, RA, GERDand GI issues. The side effects after the first one were awful – two weeks in bed – horrible pain in my neck and shoulders. After the second one, not so bad. BUT, and this a HUGE BUT, my most recent DEXA scan showed that my bone density has increased so much that I’m almost out of osteopenia. Amazing results. So much so, that I decided to go for another infusion last week. Since the first time, things were a little different. I now had to have a blood test to confirm Vitamin D and calcium levels before they would do the infusion. If they were below a certain level, they wouldn’t have done it. And I can’t imagine any rheumatologist authorizing this without knowing a patient’s health history i.e. heart problems. Yes, I’m going through side effects again, not nearly as bad, but I’m more prepared this time. I could list all the medical stuff that’s happened since I’ve been on Reclast, but there’s a ton of other reasons that could have happened too – blaming it all on Reclast is questionable at best.
My bone density has greatly increased. I can’t take Fosamax, or in fact anything similar by mouth. In spite of side effects, Reclast did it’s job. I forgot to drink the water beforehand but did afterwards. I think it does make a difference. Also the infusion rate – if it’s your first time, make sure it’s slow. Take an Advil, ibuprufen, or something similar before you start the infusion. Don’t plan a heavy schedule for the next couple of weeks. In spite of side effects, I’d still recommend this. You’re pushing something foreign into your bones/body, of course they’re going to react. In my case, I’ll tough out the side effects, in favor of increasing my bone density. I don’t want the thigh and hip fractures and falls my mother had!!
I have had two reclast infusions with no side effects. I did nothing special before or after. It took about 30 min and I resumed the day as if nothing had happened.
I had the Reclast infusion yesterday, Nov. 9, 2011 at 9:00 a.m… Felt fine until I went to bed. Woke up at 9:45 p.m. with leg and foot cramps, chills, diarrhea and vomiting. Was up every hour from then until I finally got up for the day this morning @ 4:30 a.m. (which is almost an hour and a half past my usual getting up time). Every bone in my body aches and I feel like I’ve been run over by a steam roller. Did everything I was told to do regarding water intake and 1 acetomenophine tablet 3 times a day for 2 weeks before the infusion. I am a 70 year old woman and am praying that these side effects go away. The only time I’ve felt worse was when I took a Fosamax. Didn’t take but one of those and if these symptoms don’t improve you can rest assured that I won’t be having another Reclast Infusion.
I have read these comments for over an hour. Negative 10 to 1. All from Women. I am a man of 76 years that without ever taking Reclast have had the joint and muscle pain almost identical to those who have taken the Reclast. However I have not had the fever,chills,nausia, nor any of the other disableing life threatening symptoms that seem to be common with those who have taken the Reclast infusion. For over a year now I have lived with these pains, aches etc.I have sought and found relief by taking ,3 times a day (1) Lortab for pain along with (1) methocarbomol muscle relaxer along with 1 time per day (1) 200mg Celebrex. I will add here that it has been recommeded by a Dr. that I take the Reclast infusion. I have not started the Reclast as yet. If I take the meds mentioned I feel as good as a much younger man would who had never suffered the pains and discomforts I mentioned. My question is why should I take the Reclast only to experience the other negative side effects that are reported here on this site? I realize that my Osteoparosis is probable not being addressed however I think I will just wait before getting the Reclast. Those who are suffering the side effects of the Reclast infusion seem to have nowhere to turn for relief.